Why “Your Scan Is Normal” Isn’t Sometimes Helpful

“Your scan looks normal.”

If you’ve heard that and still hurt every day, you know how empty it sounds. It’s not reassurance, its not helpful, it’s dismissal. The trust is, endometriosis doesn’t care about your scan. It hides in places you cant see, it grows into tiny corners, it sneaks around and thrives in ways imaging can’t see. Small lesions, deep tissue, nerve involvement can all be invisible on scans but can be absolutely brutal. Pain doesn’t need proof to be real and yet the system treats visibility like validation.

Suddenly, your experience is negotiable. You start doubting yourself. Wondering if you’re dramatic, oversensitive, failing somehow. That’s where the real harm lies. You doubt yourslef to a point you dont ask for help. You second guess everything you’ve been experiencing. You put your head down and stop looking for answers. Your pain doesn’t just disappear when the radiologist writes the report of your normal scan.

Personally, we think that’s unacceptable to dismiss people just becuase their scan is “normal”. Pain should matter more than proof. Listening to someones experiences should outweigh imaging.

Your story matters, even when the scan says nothing. So stop apologising for looking for help. Keep asking questions. Keep pushing for care. Your body knows what’s wrong long before a test confirms it.

Normal scan does not always mean normal.